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Each of us can experience something differently. Tell us your story.
Leave your testimony!
Your testimony is important!
Knowing your story, your emotions, and all the strength you used to go through this is crucial for us and for those who would like to receive our help.
Fill out and submit the following form, writing about your experience with our Association.
Simone Ambrosi
When I took the field I always felt a strong emotion … in soccer I had found everything: running, venting, friends, the will to win.
Then suddenly everything went dark–wires, monitors, surgeries, white coats, and a damn beeping sound that didn’t let up on me for weeks, day and night.
Suddenly life changed, I felt lost, until I decided to do this project–the UNBEATABLES!
Eli Pieroni
Diagnostic in 2006,implantation in 2009. My disease is hypertrophic cardiomyopathy of the septum…
Since the discovery of the disease, nothing has ever been a given: the idea of sudden death leaves you no respite. Everything becomes so unpredictable, changeable, absurdly precarious. Everything can go dark in three … two … one … And this terror leads you toward two paths: the agonizing fall into a gulch of panic, or the leaping of this gulch, the continuous rebirth. The awareness of the end leads you to want to devour everything. You want to feel loud and clear every moment of your life; you cannot let anything go to waste. You feel that you don’t have time, that you can’t afford to throw away even a second, so you take, take, take. But all this becomes a huge responsibility, an ever-growing burden to carry, a colossal load of expectations and demands on yourself. That’s the crux of it for me now. To love, in that full and conscious way, every fucking moment for what it is. And seeking, but not finding, the meaning that moment has for me. Only in this way have I discovered that I can truly appreciate everything and feel things for what they are, without fear anymore.
Adriana Polledri
I chose to continue the race for life.
He and He allows me to do that.
3 appropriate interventions saved me.
Linda Rossi Ferrari
Self-taught painter Linda Rossi-Ferrari, born in Marseille (FR) on November 1, 1982, has lived in Ticino since the age of 5.
Linked to art and drawing since childhood, although she did not attend art-related schools and environments, she always expressed an innate desire in drawing, which resulted in painting. In 2008, Linda suffers a sudden cardiac arrest and is saved by co-workers thanks to a defibrillator and resuscitation maneuvers. Touching death inevitably haunts her life by leading her to existential questions.
Long and difficult was the rehabilitation, between Cardiocentro and specialized clinics. Among the various forms of rehabilitation, the most emotional one has been painting, because of the need to express emotions too strong to contain thus finding order in the chaos of life…
Catherine Piola
Water was my ideal environment, silent opponents …
everything was in a distant, muffled sound, my heart beat the rhythm of the strokes….
I didn’t hear any bells ringing, the cardiomyopathy that struck me showed up without asking for permission….
I now look at that water with different eyes-now I’m afraid!
Then a call, a summons that lit up my heart to which I could not say No: to become a UNBEATABLES!
Vera Signoroni
Symptoms since 1998
Diagnosis Arrhythmogenic Dysplasia since 2007
“As a kid you spy the boys playing at the balky pace of your sick heart and you get the urge to go out and try what you’re missing to run to the lawn, and you keep the urge, and you stay thinking how the hell do they catch their breath.”
Cit. De André
Lucia Anna
…in the adverse circumstances I have had to face, I have always been aware that the family is like an oak tree, with many roots, deep and strong…
…A united group is always stronger even against the rarest diseases.
Being united and exchanging advice and experiences helps to live … never be afraid of the disease, we are all stronger together …
Kudos to these guys who are doing their best against Sudden Death.
Teresa Marotta
since 1999 Hypertrophic Obstructive Heart Disease – ICD Carrier
“A winner is just a dreamer who has never given up.”
Cit. Nelson Mandela.
Giulia Bazzighi
1994 – diagnosis non-obstructive hypertrophic cardiomyopathy
2006 – implanted defibrillator
2016 – on transplant list
“Imagine if THAT day really came.
you would understand it from a Heaven that has NO mystery
would be the BEGINNING of a New Path
WITHOUT fearing that Cold that cuts you inside that is NOT winter.
Without Fear in the EYES what a world would be IF nothing is stranger than what would help us.”
Alexander Marengo
I never stopped at anything but, on that December 1, 2001, it was my heart that decided to stop …
Today I am still looking for a peak to climb, the most difficult, the highest… Forbidden to throw in the towel, for us and for future generations.
Linda Spinelli
I loved bike racing: the wind in my face, my heart pounding, my legs aching, teammates, training, races…
Cycling was my freedom, my source of serenity and the means to overcome daily problems.
Running on a bike teaches you a great lesson: after an uphill there is a downhill
…Or an even more challenging climb!
And so it happened: yearly visits, electrocardiogram, ultrasound of the heart, and here she comes into my life, Arrhythmogenic Cardiomyopathy of the Right Ventricle. Goodbye cycling, goodbye riding.
No sport was suitable for me. Suddenly I was catapulted into a world of hospitals, medicines, surgeries, defibrillators, shocks.
But I am still here, I am a survivor, I am an UNBEATABLES!
Dimitri Vitaletti
…I wasn’t a sportsman, I didn’t leave a team and friends, I was just a simple boy, living in the country, living free among nature and its games.
…For years I stopped living to survive, years filled with suffering….
Now I try hard, with me are wife and children, I always think about their future….
Meeting Simone in that bar was a sign of destiny, she did not hesitate, she was able to read me inside and channel what I had never been able to express-I am an UNBEATABLES!
Fabrizia Ferri
Everything changed on January 3, 2010, you think your son is fine and having a good time in the mountains with friends and then you get a phone call that makes your blood chill…. and you struggle to recover…but life goes on and after not even a month your first-born begins to have problems…. and you fall back into the abyss but this time you are still on time…
Now there are only two of them…. but despite difficult times the team continues with one protector in the sky and one in the dancing heart…
Mina Francisco
STEFANINI LUCA Deceased at 20.
Autopsy Result Arrhythmogenic Dysplasia
“…Luke had a big heart, he was a golden boy, the one everyone would like to have as a friend, as a training partner, as a brother, as a son….
…Luca’s story is well known unfortunately in the pages of newspapers, in doctors’ sentences, in trials…
…I am a Mom and I still feel like Luke’s Mom every minute of the day….
…that’s why I keep fighting, against superficiality in diagnoses, I would like to show the world the worst example of what can happen…to make sure it doesn’t happen again…”
Mom
Tell about your experience!
Leave your testimony!
Your testimony is important!
Knowing your story, your emotions, and all the strength you used to go through this is crucial for us and for those who would like to receive our help.
Fill out and submit the following form, writing about your experience with our Association.
